Another year, another animal

It's been five years now. I'm so glad I have this on line journal to look back on. Even if I only write once or twice a year, it's perspective. Looking back on last year's sharing, it was very heavy. 

Thanks to this little guy, this year feels a lot lighter.

We'll be celebrating the one year anniversary of his unexpected arrival in a couple weeks. He showed up one night hungry and scruffy. I looked for his owners. I looked for a new home for him. Lots of people said he was meant to be mine, but financially, even just a cat is a frivolity. But, potential owners didn't work out, (I made a new friend though!), and I just could not bring myself to give him up to a place where he'd be in a cage or a small room until adopted. He'd been living on his own outside and that just seemed cruel.

So, Houdini the little escape artist became a part of our family. I'd shared about him on social media. The first night we noticed him, he was so hungry, and I'd later discover injured. It was dusk and he scampered by me as I was walking up the trail and sat down a few feet away. He just sat there lifting his head to smell the breeze. He seemed completely unbothered by his hunger or his wound. He just enjoyed the night air. He made his way down to the barn and stayed the night there. He lived in the barn for a while and it took a bit of maneuvering to make the barn secure. He was so independent, he would push his way through the doors we'd barricaded to keep him safe at night and dig his way out. He wanted out. And he wanted in. I can really relate to that. We want what we want. 

My working class Brit teased about him getting his boots planted firmly under the table. This is true. He charmed his way right into our hearts. Over time, his wound healed and his coat became soft and glossy. And he makes us laugh and smile all the time. He's bright, friendly, and curious; he wants to know everyone. I guess, in some ways, he reminds me of Dom. Life has been pretty precarious for Dom, but he'll still walk outside, lift his head into the breeze, and just take it all in. He too is healing from his wounds, and he's been taken in by all of you. You've fed him and cared for him. You've made it possible to get treatment he needs and continue to cheer him on as he faces the lifelong disease of gvhd. 

Sometimes, we're hanging on by a thread.

But we are hanging on.

Last year, I was so exhausted. I had actually found myself crying uncontrollably the entire month of June. I felt alone and in some pretty deep despair.

July was a game changer. I shared here that Dominic was able to be fitted for contacts that protect his eyes. He was going blind and in constant pain. We had to get them, and if you remember, a group of artists had decided to give him the remainder of some funds they had which amounted to almost the exact amount necessary for the contacts. We still live on that divine grace.

The pandemic shifted things for us and for me. It made it easier to let go of some things. It is the strangest thing to be on the cusp of normalcy only to have the whole world shut down and then try to find a new normal and actually there is no such thing. I realized, what we all crave is not normalcy, but comfort and adventure. 

Our adventures remain our trips to Sacramento. We go every 2-3 weeks for Dom's treatment. He's kind of at a stand still where we still hope for forward progress. He's still on large doses of anti rejection medication, which should have been over by now. He continues to suffer a laundry list of ailments that we treat like whack a mole. Oh that some wet cat food and a safe home could cure him. We balance hope for progress with cheerful resignation. He is alive. He is able to help where he can. We have Houdini. All is well.

Thanks to the contacts, Dom is also able to drive a little. It was not a possibility last year at this time. We make a stop on the way home from Sacramento to pick up paperwork for my job and he drives the final leg home. It's been so good for him to be behind the wheel and taking back more of his autonomy. He's also been on the tractor as we have acres of fields to mow. This year, he's been able to help me more. This is good for both of us! We spend lots of time outside. This is one of the gifts of Covid, I think. Since we knew we'd be spending a lot of time at home, we've done what we can to make it a happy place. We don't own our home or the property, so everything we do is mindful of that detail. We're also mindful of fire danger. But, in between all that, we've planted a garden again this year and to plant a garden is to hope! We did a re-haul of the chicken coop, hopefully protecting them from bobcats and foxes, and started a new flock. (Thanks to my anonymous helper and Charlie G and Bob for their help on the coop.) And just to add to the poultry farm, we have a resident Tom. We call him Turkey Lurkey, and since I started feeding him leftover grains, he's not going anywhere. He has a damaged leg and limps around grazing on the last bit of field we've left untouched for him. We eagerly look for him in the mornings.

These things all give us life. Just being and helping in small ways where we can and breathing in the air.

No one can ever convey the intricacies of their life to another. My own mother who I speak with every day is continuing to learn and understand how we are situated, so I realize our own odyssey can be difficult to wrap one's mind around. Life as we knew it has changed irrevocably. Our goals and dreams have changed. But the one thing that remains is love. I shared a book page of the The Boy, the mole, the fox and the Horse by Charlie Mackesy yesterday, I'll leave you with it:

"We don't know about tomorrow," said the horse, "all we need to know is that we love each other."

 

 

 

 
 

Feeling like Pavlov's Dog

As I've shared already, I did something I'm proud of this past week. I gave blood. I've wanted to for many years, but I always let fear hold me back. Not fear of the needle, though I don't like them, rather fear of finding out I'm anemic and my blood isn't good enough.Once I saw bag after bag of blood being gifted to Dominic in the hospital, I knew I'd have to become the boss of my fears and get poked.
I also knew caring for Dominic has been all consuming, and I told myself not to worry until I felt comfortable in his recovery and our progress.

There was no check off list. Nothing like when we watched his white count and knew when he could stop wearing a mask. I didn't have any concrete dates in mind. Like a lot of our more recent milestones for me, they've been more gut driven. An ironic turn of phrase given Dominic's plight.

But the day came where I felt like I had something to give. No bells or whistles. Just, it's time. Kind of like when I went back to yoga. It was just time. I definitely walk in the world more intuitively than with any sort of concrete calendar plan.

What I hadn't anticipated was how much our experience is imprinted on me, how much our experiences are like a bell going off in my head.
When I walked into the donor center, I had the usual experience of being in a new place, doing a new thing. I'm one of those people that takes in everything in a room. But there was a little dissonance in my taking in.
For the past nearly two years, when I entered a room with people in hospital reclining chairs with tubes going into their arms and machines making noise, I was in a room of illness. The woman I checked in with was describing the different donations: blood, platelets and so on. She waved her arm toward a row of people reclining with hospital blankets and whirring machines. I felt like an intruder. I felt like my wellness was an insult. Like I should walk softly and speak quietly.
The realization that I had projected our infusion center experience on to this experience was a little unsettling. It took me too long to realize. I think it also took me too long to decide to donate blood. The young bubbly woman next to me made me realize all was well in this room, and that I wished I'd began donating decades ago. But it's never too late, and I will continue to give of myself in this way.

And speaking of the infusion center, we were just there today and we're headed back in another week. Dom needs another infusion of immunoglobulin. (Part of the blood/immune system). All the other numbers look good.
This was our first doctor visit in a month. It's the longest break we've had since this whole saga began 20 months ago. If it weren't for the need of Igg, we'd get another month off. But needs must.

We went back to the 4th floor after our visit with the doctor.
The 4th floor is the Bone Marrow Transplant Unit in the hospital.

Dominic has not been eager to revisit the place of so much pain. He also has not been eager to return until he's back to 100%.
But our friend, who had a transplant the same week as Dominic, has been readmitted. Her cancer came back.
She sent us a text.
We had to go and see her, to tell her we love her and support her.
We had to face her.
Because our biggest fear has happened to her, our friend.

And when she told us how happy she was to see us, how just to know we'd trek to her and say hello when there is nothing else we can do for her, I knew what she meant. I knew just the feeling of being seen and being loved.

And I'm so proud of Dominic for conquering his own fear. For facing the hallways that housed him in his lowest time. I'm so proud of him for owning that cane and realizing though he's not making a triumphant entrance walking easily with his original shock of hair, he's leaps and bounds ahead of the guy who was wheeled out and barely able to sit up. The triumph is in his strength to face this place again, for love of a friend. And I'm so proud of him for facing the fear that our friend now embodies.

Life is strange. We want to remain positive. We want to trust better days are ahead.
We know that picking up the worry is like picking up leaches that would suck the life out of us. We know it's toxic. We are living in the tension of knowing our fears may be realized, but what a waste of life worrying.
We learn to put it down. Again and again.
We learn not to be Pavlovian in our experience. We learn not to associate things in ways that will cause us pain or worry or fretting. We learn that worry doesn't add anything, but it can often diminish.
We're learning to see through different lenses daily. We're learning, and relearning, and learning again how to live with peace and joy. We're learning that everything in life is both meaningless and meaningful. We're choosing to focus on the meaningful. We're learning that a bell doesn't always mean what we think it means. We are learning to tailor our reactions, that we can at the very least choose, and choose love.

The Winds of Change?

The wind was howling last night. I'd fallen asleep early, like any good stodgy 40 something year old should do on New Year's Eve. The air always feels different to me on this once a year day. Though I resist the notion that the day is any different than the other 364, resistance alone says this day is different.  I don't make resolutions. I don't come up with a word. I don't know why not. I just don't.
Well. I do know why not. Because life happens in ways we cannot predict. I know now better than ever that any resolution I made on the eve of 2017 or 2018 would be miniscule in the face of the resolve I would have to muster to just exist.
I was grumpy last night. Out of sorts. I'm struggling to transition from Red Alert to hopeful.
The wind howled.
I'd put some of Christmas away yesterday, and it sat in bins on the back porch just outside the bedroom. I wondered if I'd snapped the lids, or if three generations of ornaments and ephemera would be flying through the field behind our house.
I'd remarked earlier how we'd spent last New Year's Eve in the apartment beneath elephants wearing cement shoes. We thought we were safe as we nestled asleep by ten. Only to be awakened when the bars closed and the elephants came home and trumpeted through the night and almost up until our doctor's appointment at 8 am.
I thought this year would be different. On so many levels.
But the wind howled.
Someone suggested yesterday, as I closed the year with an afternoon yoga class, that we not spend our last hours of 2018 pressing early into 2019, but that we look back over the year and acknowledge our accomplishments.
I survived?

I listed my accomplishments over dinner, but they came out more as frantic arm waving.
How does one quantify the accomplishment of spending the greater part of two years in a hell not of one's own making? And surviving.

I'm so shortsighted as a person though.
There just didn't seem to be enough time in December. I had it planned one way, and then some things came up and I spent a great deal of time doing things I did not expect to be doing. You'd think after 18 months being on the crazy roller coaster schedule we have been on that I'd roll with it. But, I spent most of December feeling a frenzy. Feeling like I couldn't do it all. Feeling defeated. When will I learn that life is all the days before and all the days after that one moment? I would tease people when they'd ask how are you in the thick of our crisis. "Living the dream," I'd say, Dominic in a hospital bed and me heartbroken for him. It was a sarcastic stab at humor. But it was more than that. It was truth. He and I had had many happy moments before, and will have many to come. Things may be difficult, our struggle may be extra, but we're not limited to living in the worst of those difficult moments. Tomorrow is here.

A friend gave me daffodil bulbs.  The first flowers of spring, I heard. They are my birthday flower. When I see the daffodil, I know both that spring is coming, and that I am older. But the daffodil is magic. I don't feel older. It doesn't bring with it the baggage of aging that humans have built an industry around resisting. It simply affirms to me that I exist. It speaks to me that there is beauty. There is spring. There is hope.
Wikipedia says the narcissus has conspicuous flowers.
If I must be conspicuous in anything, I should hope I could be as affirming and magical as a flower.

I'm sitting with my back pressed against the wall heater. Dominic is still sleeping, still mending. We're both on bridges right now. He's coming back to life. What has he accomplished in 2018? Basically, a life time.  He reverted to a sort of infancy in the ravages of the disease and has fought his way back to standing on his own. It takes newborns several years to accomplish what he has in 5 months. He has walked down our little hill to the car and back to the house and uses only a cane in the house now. He's very hopeful for the year. He's eager to work and travel.

I'm not there yet.

Aside of the fact that I'm a home body, we were away from home nearly 6 months just this year, the idea of making plans, of being out and about scares me. I need stability to seep into my bones a little more. My accomplishment for 2019 will be steeping in goodness. There. I've blogged my way into an intention for the new year.

But how?

2019 came in like a lion. I lay awake wondering if the venerable oak trees book-ending our house would topple in on us. The wind howled and I could hear things crashing and banging outside. One thing that banged a lot is one of those curtain screens with magnets to hold it together. The magnets rhythmically hit the wall and I think one of the first things I will do in 2019 is get rid of it. I'd left it there through other storms thinking it would be of service in the summer. Perhaps I will get rid of it, and something better will appear at the right time. It will be the first of many things I will let go of to make room for what is to come.

I will continue to be grateful for all we've been given and all the love we've felt.


A friend suggested last night's winds are the winds of change.
I hope so.
I hope they have thoroughly cleared out anything that is keeping me from letting goodness seep into my bones. They have shown me I must make way for the new. Though the winds howled all night and stole my sleep, they left the gift of hope.

I am hopeful for us all this new year. Hopeful we will all find goodness to seep into our bones. Hopeful we will all make space for something better. Hopeful I can be part of the goodness in my own life and yours.

Happy new year to all far and wide.

Rebuilding this house.

An overflow of flowers from a friend. 

It's difficult and easy to believe I have not blogged in three months.

I don't know if it was a lack of time or a lack of heart or both. The first month after being in the hospital, all I could do was look after Dom and sleep. I gave myself permission to do just  that after I'd done whatever work had to be attended to.
Looking back at our time in the hospital, it's almost surreal. Living in a hospital is weird enough. Constant noise, interruptions and lack of autonomy. Constant dread regarding Dominic's well being. That alone is exhausting.  I guess even the luxury of cathartic writing was too much.

The beauty of it is, when I look back on our time in the hospital,  I don't remember (mostly) the exhaustion. I think of the nurses we had relationships with. I think of the warmth of the staff. I think about how much people cared for Dom to get better. I think about how grateful I am that we are home now.

But 3 months! Where has the time gone? 4 months since we've been out of hospital.
I guess I have less material as I'm not in a hospital full of characters any longer.

And, to be honest...my spirits have definitely taken a hit.

It's difficult for me to be cagey, so it's easier to just not write at all. Because heaven forbid anyone actually see me!

As I sit and write, Dominic and I are watching The British Baking Show; they are making Samosas. The first Samosa I ever had was when I visited our good friends in Edinburgh attending University. I think that's funny. I traveled to the UK only to fall in love with an Asian dish. My friends were fortunate to live down the street from a little market that sold the best fresh homemade Samosas.
Dominic and I watch a lot of food shows as he forges a new relationship with food. Eating still causes a bit of pain for him. Too often, quite a bit. (If I could add a sound effect, you'd hear a record scratch here. Science corner time. The pain he is feeling is not something that can be cured by what he chooses to eat. This pain is his new immune system attacking his gi tract as an enemy.) We look forward to the day he can just eat and be merry. Will that day even come? I tease that when our trips to Sacramento come to a slow drip, I can get a job as a line cook in a breakfast restaurant, as each morning I fix eggs, sausage, toast, tea and sometimes a bit of leftovers in the mix.
Last night, Dominic made a simple apple bake he'd come across. We've made some apple dishes together where he sits at the table peeling and coring and I navigate the rest. We have to be so intentional right now. There's the chore of eating for him, and the pleasure of eating we're looking for. (I've unfortunately found too great a pleasure in eating this past year plus.) We both need to stop and recognize we're not just jumping through a hoop. Life can seem mundane; particularly when you're as severely limited as we have been. As Jane Austen says, life can seem a quick succession of busy nothings. Especially when it is punctuated by one doctor visit a week that has lately made him sick. Anticipating and recovering; round and round we go. If we're not careful, the days slip by into oblivion.
Even as I type, I'm mindful that we've not been mindful enough.
I'm juggling my part time job, care-taking the ranch and Dom. Instead of having a schedule I can follow, I feel like there is a rope around my neck and different tasks yank me in every direction. I'm sure I am not alone in that feeling. I'm sure lots of my friends feel this way, juggling children, parents, jobs, and all the curve-balls of life. I keep trying to put it into perspective, but perspective gets whacked everyday. I've been living in survival mode for so long, I can't catch up.
If this blog post were a dubstep song, this is the part where the bass really drops.

I'm struggling. That rope around my neck yanking me along would be tolerable if it wasn't accompanied by another rope that regularly chokes me with the whatifs. Whatif he is in constant pain the rest of his life? Or the dreaded and common whatif it comes back? Or the ever so slighter tug of how long before he is strong enough to walk up and down our hill again, or drive? (Or even bring me coffee.) I try and push it back. That alone is exhausting. Without diminishing the true exhaustion my fellow humans feel, what I would give to be exhausted by a career or a child or a social life. Sometimes I feel like people think what Dom and I are experiencing is over. Solved. Complete. How I wish it were. Since our immediate needs are met, I think people forget we have heart needs. We have long term needs. And every day I remember it's no human's job to meet our needs. But it brightens my day immensely to know that people care about us, about our hearts. Sometimes silence is brutal. But little messages checking in, short visits, phone calls. That's everything to us right now.
.
California is struggling. Again. Fires to the north and to the south. I was glued to the news the day the fire broke up north worried for a work associate and his family. (They are safe, they lost everything.) Then I worried for other friends a little west of the fires. They are safe. My heart has ached right along with so many aching hearts seeing so much loss and tragedy.

I listened to an interview with a woman who barely escaped. The way out of Paradise is narrow. (I can't help but see some irony here.) She sat in her car for many hours barely creeping down the road. She was interviewed because people want to know what it's like to barely escape from a fire. We're curious people. We gravitate toward the sensational. As she shared her harrowing tale, I'm sure listeners can see the flames coming up behind her. We can imagine six hours in a car wondering if we'll outrun the fire or if we'll be overtaken. While I think we can all empathize with that experience, we'll never know exactly what the people coming down the hill felt, as they people got out of their melting cars and ran for their lives.

But I feel like I've been driving down that hill for 18 months now. Trying to outrun the fire with Dom. It's so hot I wonder if we'll withstand the heat. The cancer diagnosis was like that rush of adrenaline you feel when you realize you have to flee. The transplant felt like losing a home. But this graft versus host, this feels like being stuck on a hill wondering if we'll make it down the hill or if the flames will overtake us. And Dominic is the one getting singed along the way as my knuckles are white gripping the steering wheel.
It's terrifying. And exhausting.
And as much as we put on a brave face, and try to be positive and grateful....this journey is more than we can always bear.
It's incredibly lonely.
Friends have shown up in the most unusual ways. Friends I would never expect anything from have offered a shoulder, a house, money, food. I'm in an awkward position of feeling like I don't have enough time, but feeling like I need to connect with people.
We're not out of the woods friends.
We're pleased with the progress Dom has made, but he has such a long way to go. We thought he'd be free to live a normal life by year one. And now it looks even more far away than we ever could have imagined.
As is always my way, I do not like to close on a sad note. A weakness in my personality is that I like to be understood. Once understood, I like to sigh a contented sigh and press on. This is probably the most difficult thing Dominic and I will ever endure. And yet, we are always held. Always loved. Always cared for. Cared for in miraculous ways. And the season of Thanksgiving is here! We have much to be thankful for. I don't have to live in that car careening down the fire hill. I can live in gratefulness for all that is going well, for all the ways we are lifted up and for all the love shown. Resting in that and enjoying some twinkle lights of the season sooth my soul.

jiggity jig

The news is out. We are home! We are officially home. After one hundred plus days, the temporary home story is over and the transition to home sweet home begins.

I wish I had taken the time to sit and write so many thoughts...but it has been a whirlwind!

We began the transition back in February. We talked about what to do as our commitment to the house in Sacramento was coming to an end and the neighbor's ability to not tromp across the floors at 3 am was not coming to an end.

We made arrangements for friends to be with Dom while I spent a weekend getting our little cottage ready. I'd let the cats have free reign in our bedroom and after 3 months of their indoor/outdoor fur-bodies lounging on the bed, it was not pretty. Everything came off the bed and got a good wash. And, call me crazy, but I started spring cleaning from one corner of the room, all the way through the house. No, I'm not content to just vacuum, dust, and mop. I must go through every drawer and basket and cupboard and spring clean.

But I have to back up. You see, I was not the first person around here to spring clean. The tractor shed is attached to our home, and over the years, the shed became the final resting place for a lot of junk. (The homeowner's, not mine! I have plenty of junk myself, but perhaps not a garage door motor circa 1970.) Over the months we'd been gone, some special people had been weeding and cutting back bushes. And one day, a group of very special people spent love day cleaning out this space! No small feat. I parked, ready to tackle everything all at once, in the back of my mind knowing I would also tackle this space soon and.....it was already tackled! It was cleaned out! And, as I got closer to our porch, I saw pretty flowers fresh planted! My heart was swelling and racing. I felt so very loved.
It was like an Easter egg hunt, that's what I thought, as I walked around the house and found once empty flower pots and ceramics filled lovingly with flowers and succulents. And a young man had spent his day weed mowing until he ran out of string. I was so touched that the son of a friend would spend his day caring for us so tangibly. Our firewood was stacked neatly, and as I have stacked firewood myself, I know that was no small job. Everything looked so incredible. Our dear friends did what would take me weeks to do in one day. I still get a little verklempt thinking about it.

And they are dreaming of outdoor spaces with us. Dreaming of a summer spent outside in beauty, quite the opposite of this past summer. And I could not have better people in my life if I tried. I attribute it to Dom and his winning personality.

So, armed with all those good feelings, I set into the house. I covered the table in items that would be happier in other homes. I packed the last of Christmas away. I of course cuddled the kitties. And I vacillated between can this really be happening and we are coming home soon.

I spent the first day and a half doing the purge thing. There was an added layer of looking to replace things my Mom had lost in the fire and finding things I was so relieved were not lost. My heart still hurts when I think about the fire. It's crazy to me to think back to where we were that October. Dom was on round 6, the dreaded even round of chemo, and we still had not found a donor. There were possibilities, but no one clearly committed. I think we were as low as could be. And waking up to the terrible news that our city was on fire, our home was under threat, a beloved home lost already, and Dom not able to lift his head off the pillow, those were dark days. Those days, it was very difficult to imagine that someone would donate their stem cells and we'd find a place to live in Sacramento, and we'd make it through the 100 days.

And there I was. Preparing our nest that survived the fire, for my man who also survived his own fire. 100 days nearly complete and pretty little flowers to welcome us home.

And wouldn't you know, if I wasn't already emotional enough, my Aunt was doing some spring cleaning and purging of her own, and offered to send me some of my Grandma's things she'd been keeping. In figure, I am a carbon copy of her. My aunt sent me a couple pictures to see if I'd like the items or not. The black rain coat that was my Grandma's last coat I remember her wearing immediately brought tears to my eyes. There was just something about the cuffs that instead of buttons had little bows. The coat spoke to me also of the adventures my Grandma went on. She wore this coat to Switzerland and Chicago. She'd traveled Europe straight out of high school in 1938. Her steamer trunk with stickers from each country she visited sits in my house complete with much of her travel attire. She continued to travel as she could throughout her life. Somehow, that coat held so much Grandma, whom I love dearly. I'd already shared all this with my Mom, shared with her how I cried when the photo came, and cried again even as I shared this with her. I cried as I opened the box of treasures cleaning weekend, and shortly thereafter, Mom showed up. The coat fit her perfectly. It's raining even as I share this, and it makes me so happy that my Mom should have my Grandma's coat. (This Grandma is my Dad's mother.) But for my mom to have her coat just felt right in the midst of all that has happened.

And all of the above is to say, if you didn't already guess, this is an emotional time! But, I welcome the emotion. I welcome the connections and the history and the memories and the dreaming of better days and making new memories.

I scurried around for 2 nights and 3 days and with the help of Mom and friends, got it done. I feathered the nest and returned to Sacramento to scoop up Dominic. He'd had a great weekend with friends.

I packed up our little mini to the roof. (We'd arranged to pick up the rest, which also turned out to be to the roof, on our next doctor visit.) Dom stayed in the car as the first thing I packed up is his work computer. Once I could not shove a single other thing inside, we set off for home. I wondered how he'd feel heading home after 3 months of being away. We were mostly excited and relieved to be saying goodbye to the noisy house. No more elephants up stairs. No more metal kitchen with 20 pound flat ware clanging loudly every time we ate. And we were so longing for home. And, we were nervous as we weren't technically freed to go home. We just decided it was time. But, a part of us worried as we didn't want to jeopardize anything we'd worked so hard for.

Dom felt the same shock and awe I did as he walked up the path and saw all the work that had been done. He looked up at our green hills that were once brown from the fires. He scanned the tree line taking in the ones that burned down, and the ones that look like they'll make a comeback. He masked up and took a walk.

And now that we're "officially" home, the sweet relief can really settle in. Now that the doctor said it's "okay", we are sleeping like babies. He is extra fatigued right now, as the steroids he'd been on gave him energy. He's completely off steroids now, and the doctor cut out another medication yesterday. Each cut is a sign of moving forward. So, he's settling in slowly. I'd imagine it's bitter sweet to be home. Mostly sweet. But there's still limitations. We're still taking precautions as his White Blood Count is taking its sweet time rallying. It will be some time before he can integrate back in to work, and even more time before he can work in the garden or do things he'd normally do around here. But for now, he can wander around outside. He can set up his office and be inspired by tutorials and past images he's shot.

And I've already gotten my fingers in the soil. My neighbor took me on a surprise adventure and bought me a plant to put in the ground with all the fixings. She'd done some research and took me to just the spot for what was needed. We spent the next morning weeding out a spot that was once a jumble of pots, and carved out a plot for sweet peas and peonies.

Looking back, time did fly and move like molasses. I did not know what to expect, but I think things went better than expected. I bought Dominic a bell for Christmas, thinking he'd be an invalid barely able to move, and that was certainly not the case. He's been so strong, and has received so many compliments from the doctor and nurses for what a good patient he has been.

We still have many trips to Sacramento. There's still many tests and blood draws. But we're home! And the first tests returned very good results. Dom has just returned from a morning walk and our noisy black kitty is telling us what's what.

The world will be saved by beauty

Tahoe bound 2016

One of the things that gets us through this difficult time is looking forward to the future. Paradoxically, while we live in the moment we know this moment will pass.
We both live in the moment and we look forward to a day in the future when this whole business of chemo and transplant is a memory.

I have noticed that while I very much would love to visit Europe, what stills my heart just now is nature right next door. I realized it even more as the fires up north threatened Multnomah Falls, and my heart was breaking.
A shirt tail relative of mine took her girls on a National Parks tour and as I sat bedside in the hospital, my heart wandered with them. The photos that would show up in my social media made me swoon. They brought me comfort in an uncomfortable time.

Tahoe is just about two more hours from our hospital. I often want to just keep driving until we get there. I have also been to Tahoe enough times that the drive to the hospital is often mingled with faint memories of happy anticipation. Once upon a time, being in car on that highway meant traveling to beautiful Tahoe.
Being in a car will mean that again one day soon.

What's really prominent in my thoughts is the of beauty of Yosemite. In my mind's eye, I can see fields of wildflowers below the seemingly unshakable face of El Capitan. It feels like a strong anchor in this rough sea of unknowing.

The world will be saved by beauty~ Dostoevsky. When he wrote these words, I think he meant an even less obvious beauty than that of nature. The beauty of strength. The beauty of love. The beauty of selfless love. These are attributes of beauty. While I cannot claim selfless love, by any means; I can say that by Dom and I both allowing ourselves to be refined by this challenge opens our eyes to beauty around us.

There is beauty in kindness. There is beauty in gestures of thoughtfulness. There is beauty in people coming together.  The disasters in America are showing the beauty of neighbor helping neighbor. Our own

personal disaster is showing us the same. It's showing me over and over that the world will be saved by beauty.

Who is up for camping in Yosemite fall of 2018?

The Religion of SELF

Another tragedy. Another why.

As I perused social media last night, I saw many different reactions to yet another terrorist attack in the UK.
There was heartbreak, anger, questions of why and there was blame.

Blame went in several directions. Blame is always many layered. It can never be laid at the feet of one person or idea.

I had already seen ugliness earlier in the day. It did not end up in murder, but it threatened to. A very intelligent person I follow shared the bevy of hate mail he'd received while away. Much of the hate included threats of harm to him and his family.
I was sickened by all of it. And I observed: violence begins in the heart.

Several people shared that religion is the problem. I am going to both agree and disagree, and I hope my reasoning will serve the greater good.

To lay blame of violence at the feet of religion is easy. It is true, religion has caused massive violence throughout history. But religion is also responsible for so much good in the world. How can it produce both violence and good?

I believe how we walk in this world is a layer of the problem. It was unnerving yesterday for me to see so many people so opposed to someone else's ideology, that they threatened harm. These people were not attacking based on religion. They attacked because they were "right" and he was "wrong". They shared all the violence in the heart with their words. Not in the name of religion. I posit, they share in the name of self.

I think our religion has become self. We worship our rightness. We worship our needs and wants and what we think we deserve.
 I think some people of faith ferret that out. People of all different faith systems use their faith to chisel away at the self that would consume anything or anyone in its path and allow their selves to be molded in such a way that produces love and beauty for the whole world. I believe that people of no faith, atheists and agnostics can and do the same.

And then there is the religion, of all faiths and no faith that would be right at all costs. The religion of extremism. The religion of violence toward all who disagree.

There are so many ways to react to these times that devastate and are devastating.
I do not think there is one right way to react.
I would encourage all of us though, to lay a portion of blame at our own feet. When we acknowledge our own selfish acts of aggression, we can step outside of them.
In so doing, we can become stronger. We can become a united front against the real violence that does threaten everyone. We can create a hopeful future for our children and stand united in love.

Groundhog Easter Day

In the Christian tradition, Easter weekend is typically a time of death to life.
It's both a somber weekend and a joyous celebration.
No matter where I am in life, I always find myself a little more introspective.
To be honest, Easter has rarely been a time of joy for me. It's kind of a Groundhog Day of sorts. I know, every year, Easter is coming, but I can't live it out and step away. The dying happens over and over. It's never done. Something in me dies every day.
I am in part inspired to write this morning, because I just scrolled past yet another image of the man in the White House that engendered multiple negative feelings. I initially felt a gag reflex. Yes. True story. I gagged. You see, the image was somewhat a double entendre, and it was so suggestive, I had to gag. And then I felt an actual tangible ache, deep ache in my heart. To think that people who profess a faith in the man whose death and resurrection is observed on Easter weekend, would actually look up to and defend this man who would sooner hammer the nails himself.
And just after that photo, a photo of a Syrian family in a field. It stops me in my tracks, it's beautiful. Children in vibrant colors and yellow flowers dot the green landscape. But it's a story about people being bombed, even in their safe places. The space negotiated as safe for evacuees on both sides is bombed. And thoughts of all the Christian people I know who only want to bomb Syria from afar, but exclude them from our country. And my mind just can't comprehend.
And it's all the more palpable over Easter weekend, these thoughts and reactions. I sat there and thought about sharing the first photo and my disgust over it. And then I thought….maybe simmer down, it's Easter weekend. And then I thought about the response if I did post it. Maybe no one would even respond. But if they scrolled past, they'd be thinking: That was a long time ago. People change.
It is a weekend celebrating new life after all.

Then I thought about my own embarrassing deeds. Thankfully, (as far as I know), there's no photos. There's no grab em by the….audio. There's just stories. And times I made people feel bad. And private things. Thoughts and actions. And I realized, if I ever became a public figure, I would own it. I would wear my remorse like a badge. Because there is strength in honesty. There is life in death. Prune a rose tree and it grows back stronger and more beautiful the next year.
And then I saw the Syrian family, and I knew I wanted to say something. But what?

For some reason though, things are amplified for me around Easter. I've had some traumatic experiences. I once had someone close to me scream at the top of his lungs with wild eyes that I was a whore. Yes. A whore. On Easter. He was not a romantic partner, but had strong opinions on what makes a whore, and most of you would likely disagree. Reaching back even further in time, I had another man tell me he thought I was a prostitute. It was awkward. So awkward. He'd called me into his bedroom to tell me this whilst everyone was just outside circling up, holding hands to pray on Easter. I'm sure their eyes nervously darted around the room as the raised voice lashed out. And I was being apologized to? It didn't feel like it because it felt like I was still being called a prostitute….and then his wife came in and screamed at both of us, and that was just all the weirdness a kid could take. Side note…I was entirely a virgin at this time. So….that's a head scratcher for sure. But my cheeks got hot and I felt the shame of a thousand harlots. And a piece of me died.
A string of these kinds of stories is why I observe Easter as my own personal Groundhog Day.
Something died in me those days. Because I was not who these men accused me of being. And yet, I was also not perfect. So all the shame and guilt for the bad things I had done mingled with the shame and guilt of the things I was falsely accused of, and I was a heap.
So, you can imagine, that outside of any religious observations, Easter and I, we have a complicated relationship.
Here's the thing, I feel a deep remorse any time I realize I've caused pain to others. That badge I wear, it's not with pride. Something dies in me those days too.

I don't feel like this man in the White House feels any remorse. I think, more than anything, he regrets getting caught. He's glossed over his indiscretions and made fleeting apologies. And it's not my place to judge or speculate what is in his heart. But without comparing him to anyone else, but who his better self could be, it kills me that people professing that Jesus rose from the dead on Easter, would look up to a man, defend a man, that in his public life has sounded the very antithesis of the one who died. Who stands and lives for America First? Him first? No death to any desire, but false promises of giving people what they want and not really what they need and delivering neither.
And my beef isn't with that man. Well…it is politically. But more than that, I struggle this Easter to make heads or tails of a people who make every justification for a demagogue. And while they justify the demagogue, they justify things I just cannot find in the bible.

It's funny. It seems like the evangelical Christians accuse the progressive Christians of only wanting to see Jesus and focus on love. (As if that's a bad thing?) But what I see more often than not, is the evangelicals longing for a time before the cross. A time when tribes were good or bad, in or out. And though there was no America at the time of the OT, for some reason, American Evangelicals think their tribe is in. Special blessed. When everything about Jesus tells me he wants one tribe. I think the Old Testament tribalism in post Christ times led to The Crusades. We continue these misguided Crusades even today. Both through disingenuous wars for oil or in our daily lives as people kill with their tongues, all in the name of a god who is made in man's own image.

It's nigh impossible for me to celebrate a living Jesus, when so many of his followers seem to be killing everything Jesus stood for.
And so, I grapple with the groundhog every year. Will there be a spring with new life? Or are we going to continue in this winter way? The winter of my discontent, as I connect those same traumatized feelings as a younger person, to the trauma I feel today. Right now, instead of a death and resurrection, I am struggling to see past just the death of compassion and grace and generosity and dignity. Perhaps the resurrection is in me, as I learn to die to myself, my me first attitude, and offer to bring more compassion and grace and generosity and dignity to those around me. And thankfully, I know I am not alone in doing so.

Thanks to Jen Hatmaker for sharing her own raw stories. Perhaps inspired by her, I share this.

An Unconventional New Year

photo courtesy au.tv
Monty Python and The Holy Grail

Unconventional. How else can I describe anything about my life? I who wanted to be more conventional than anyone ever. My goal in highschool was to get married, have lots of babies and collect tupperware. I have not a single piece of tupperware.
So, this year I rang in the new year in the most unplanned, unreflective way.
A friend posted that the way you spend your New Year's Eve is the way you'll spend the rest of the year. In some ways, I hope that's true, and in others....not so much. The not so much is the crazier part than how I chose to ring in the new year...I'll get there.
 My Numero Uno is on the other side of the world, so I really didn't care what I did. I stayed with my friend's teenager while she went away for the holiday.
I'm so glad I did.
He is probably old enough to stay on his own, but something about this particular situation told me to go, and I knew it made my friend feel better.
The first night, I was so cautious about intruding on his life. I tip-toed around and basically passed out I was so sleepy.
But last night, we immediately started talking about everything. His Mom, Aunt and Uncle have been dear friends for over 20 years; I know a lot about this kid and his family. The words came pouring out of him. Before I knew it, we were sitting on the living room floor snuggled in blankets laughing and watching the time fly. He is one cool kid.
After a while, a good long while for a teenager and a "grown up" to have a conversation, we decided to watch his new extended edition Lord of the Rings. Our tummies were full, and we settled into the movie. We both fell asleep midway.
Here's the crazy part. They have an attack cat. You sit there smugly thinking how bad can a cat be? Do you remember the Killer Rabbit of Caerbannog from Monty Python and the Holy Grail? Worse than that. It wants to tear any visitor to shreds. It doesn't wait for you to get too close for comfort, it comes after you, scratching and biting. Sometimes, I think it has wings. My first night there, we locked him away. But last night I felt sorry for him, and suggested we let him out, the creepy fiend. He patrols the room all slinky and slow. It was fine when we were awake, because if he got too close, the kid could shoo him away. The kid is the only one who can handle this cat.
But then....I was asleep on the couch, and the kid had carried himself off to his own bed. And I was alone. With the cat. Stalking me. Lurking. Sticking his face in mine with a menacing growl. Jumping up onto a high shelf cocking his head sideways like a Gremlin sizing me up. When he got too close, I lifted my down comforter like a shield.  We'd watched Lord of the Rings, I knew how to take action. What I didn't know how to do is go back to sleep with Jaws, I mean the cat in the room.
So I sat up and started reading on my computer. I used my phone as a light to keep track of where the cat was, because he likes to sneak up. Then I realized the kid was up playing video games. It was a relief to turn a light on, and know where that cat was. We started the new year being awake at 4 in the morning laughing about his crazy cat. Not at all how I'd imagine starting the year. But perfect.
This year....I'm going to turn a light on. I'm going to illuminate that which scares me and face it, that which is beautiful and that which brings joy and magnify it. And I'm going to continue caring for the people I love and be open to wherever the wind may take me; with the light on. Happy 2013!

Why I am not married:

You probably clicked on the link thinking I would tell you about my troll skin under my clothes being the reason I am not married. No such luck. It was prompted by this: Dylan Stableford gathered together the top 40 stories and videos reposted on Facebook and listed them on a Yahoo News Blog today. I laughed at my predictability at having posted several already. And equally as predictable, posted today's story as well.
Though I have piles of work on my desk, I spent a few perusing the articles I hadn't come across this year.
One in particular has me deeply confused. Was I supposed to find it humorous? You can find it in the above article.
Here's the lowdown: A woman who has been married 3 times shared the six reasons why I am still single. Apparently, having landed a man 3 times makes her an authority. I think Bridget Jones would call her a smug married, and divorced, and married, and divorced, and married and divorced....Her reasons are deeply philosophical. Here's the list, sans inane description.
Cover your ears, she speaks French.

1. You're a b!tch.
2. You're shallow.
3. You're a s!ut.
4. You're a liar.
5. You're selfish.
6. You're not good enough.

Really? Seriously? Here's where I need help; does she really believe this? Or was she just trying to be funny to get to the the last bit? Because, I may be all those things listed, (Those of you who think I'm #1, try not to laugh too hard), but honey.... a lot of my married friends are those things too. In fact, I've often wondered how some friends, (no one reading this of course) ever landed their man in the first place. I've watched women make nagging an olympic sport. Talk about stamina.
Being married is not my goal. Not if it means also being divorced three times. And she's not wrong for being divorced three times; she's not a bad person. She just made different choices, no better or worse than mine.
So, for all those reasons, I say, marriage is pretty much like pregnancy. Some people who aren't expecting it, find they are in that "condition". Others try and try, but for no fault in um, trying, find it eludes them. (But it was fun trying, wasn't it?) Still others take precautionary measures and still land in that position. And others....like the author, find themselves with 3.
There are some mysteries that just can't be explained.
She and I can agree on one thing. It's about love. Or rather, it should be. Being single, married or divorced should all be about love. Loving yourself enough to follow your heart, and loving someone else enough to encourage them to follow their heart.

Making Myself Share

I have been woefully uninspired to actually write lately. What's more, I've had lots of stories I tell myself about my life and the world around me, but I haven't wanted to share them. I've censored myself feeling like the things I'd like to write about are too elementary, too naive too full of angst or too full of those you had to be there feelings.
Life has been really satisfying lately, but who wants to read about how excited I am to be outside picking up horse poo in unseasonably beautiful January weather? I relish my time in the barn, with the doors wide open. Rain, or shine, I find myself immersed in rain drops or bird calls, and am filled with joy.
I've been thinking on several ideas lately, in the solitude of the barn. One subject was clarified a little more for me today, through conversation with a friend, and for that I am grateful.
I've heard the term "no regrets" bandied about a lot lately, and I had to really sit on it. At the same time I was still sitting on the idea of no regrets, I stumbled across an affirmation someone I admire very much wrote: Please love yourself. Forgive yourself and know there is no thing really to forgive. You have done nothing wrong.
I thought I could understand this on one level, but on another level, I couldn't wrap my mind around it. At the time I was presented with these ideas together, I was walking with someone through a deep pain, caused by someone's wrong actions toward them. I was stuck on the person in the wrong.
I've wrestled with these two seemingly disparate thoughts for a while now. The thought that we have done nothing wrong, and the state many people are in. How is it that we can have done no wrong when people are desperately hurting?
I have come to realize, these words, these ideas are not to free people from owning their actions or from loving one another, but to free people to love one another.
It is not our place to worry about other people's actions, it is our place to worry about our own Being. Here's my theory: if we live in regret, we are likely to continue to make the same choices we regret. If we live in the place of hurting others, we are likely to feel so badly about ourselves we cannot help but continue to hurt others.
Don't get me wrong, the ideas of no regrets and you've done nothing wrong are not permission for those who live to step on other people; they are the truths of redemption. We can be redeemed. We are redeemed. When we move forward in redemption, we are granted a new choice each moment. We can choose to live more fully and openly. When we shed the guilt of regret, we can step out in love, and at the end of the day, all you need is love, love; love is all you need.

The Requisite New Year Post

I made no resolutions for the New Year. The habit of making plans, of criticizing, sanctioning and molding my life, is too much of a daily event for me.
~Anaïs Nin

I borrowed the above quote from my friend Connie and of course from Anais Nin. It really speaks to me this year. I keep thinking I need to take stock of the year, and make plans for the next, and I just can't. Or, I already have; all through the year.
I realize that no amount of blank pages in the new year will change anything in my past. Perspective can change the past though. I can either look back and hurl 2010 out on its back-side, or I can walk humbly each day, one foot in front of the other and thank 2010 for all its hard lessons.
If I put so much pressure on January 1 to be my answer to all things that ailed me in 2010, then how will I feel when I flub for the first time? Which, in my life, will be about 15 minutes after I wake up on January 1. I am fallible. I am human. I say things, do things, don't do things....it will take me no time at all to write something on my blank page that I wish I could erase. There is no eraser. And, if there were an eraser, the movie Eternal Sunshine of the Spotless Mind shows me I don't really want an eraser.
I know of someone who wishes very much there was an eraser for all the horrible things she has done and said, and worst of all written and shared, because someone has shared them publicly. I have thought a lot about her terrible situation, and been so happy that there isn't an accounting of all I have said and done for anyone to see. That said, there actually is a public accounting. It is the character we have that people see. No matter how much we try and veil our actions and thoughts, they show up on our face and in our eyes. So, as I look forward to 2011, I know it's really not a blank page. There is already so much written on my face. It is my prayer that throughout this next year, and all the rest of my life I would write love over and over.