I've teased throughout the course of this particular journey that Dominic is like a pregnant woman. It started with the watermelon. He had cravings.
Then, he had nausea. I'd lament to the nurses, all this nausea and no baby at the end?
Of course, I'm the one with the sympathy pregnancy. I'm stress eating and dutifully finishing up all the things he no longer craves. Oh, you're done with potatoes? I'll just go ahead and eat that five pounds of spuds. You're off cheese now? That's okay. I love cheese. Cheese is life. Bring me all the cheese.
I get so happy when he finds something that he really likes. I was well pleased the mornings in the hospital he started off his day with eggs, guacamole and the spiciest salsa. The white coat and company would enter what smelled like a taqueria and were impressed with his supplemented breakfast.
Dominic has been researching different diets and food sources, and on his good days, gets in the kitchen and tries new recipes. What a whole new world it will be when we're on the other side and he can eat raw food again. I think it will be a little like Christmas when he is free to dig into a bowl of blueberries. Or eat the honey harvested from the hives where we live. We look forward to these things like first steps.
I remind him there is a light at the end of the tunnel when the nausea gets intense. Some women are hospitalized due to severe nausea during pregnancy. And many choose to do it again!
We didn't choose to do this. And if we have a choice, we won't be doing this again.
But, Dominic and I are intrigued by this process. When all is said and done, this process will be about the same length of time as carrying a baby full term. And there will be a new life at the end. Dominic will have a new life. And we will have a new life together seeing things with a perspective only borne out of a situation like this.
He has made a new friend; one of many. This friend has walked where we are walking. He has had the Leukemia, the chemo and the transplant. He is a survivor. There is a photo on our fridge with this man, as well as a transplant doctor and about six dozen survivors. We are not alone. Many have walked this path before us. And many walk with us now.
This man likes to remind Dominic that he is being remade on a cellular level. He will perhaps even have a new blood type. He will have a vaccination schedule like a newborn when we are released from the hospital. I've often dreamed of being a mother. I probably should have been more specific when I spoke with Santa when I said I wanted to experience all the new mom things.
Our bags are packed by the door. We're ready to go at a moment's notice.
For now, we've woven a cocoon around ourselves. In this sense he is both the baby in the womb and the newborn. We take all the precautions and seclude ourselves away for safety. But when the time is right, we'll fly the nest and adventures await.
The beauty of this experience, is that while Dominic receives new life, we are being better equipped to enjoy whatever life is to come. We are savoring moments. We're not even half way through this journey, but we've already come so far. We are looking forward to the new life to come, and celebrating a first birthday with all of you.
Showing posts with label fight. Show all posts
Showing posts with label fight. Show all posts
Thursday, October 05, 2017
Friday, September 22, 2017
Sussing out emotions
I find myself sharing less and less. The newness of the hospital has worn off. The ups and downs of news has made me shy to share an update. It seems as if we've fallen into a foxhole. We eat our rations, and are on alert for news this battle is over, and weary of taking hits. So we sit. Quietly.
I woke with a big 'ol lump in my throat. Yesterday was hard, on so many levels.
Dominic is full of questions regarding the transplant. Sometimes the answers are useful, sometimes they are less than useful. He asked our irregular doctor about 9 out of 10 match bone marrow transplants. (Which is the best Dom is looking at currently.) The doctor said he has only ever performed 2 transplants which were 9/10 match. One lived. One died. Squeezed Dom's ankles for Edema and was out the door.
What we later found out is that the patient who died had died of congestive heart failure pretty unrelated to treatment....but we got to stew on the 50/50 chances for a while. We were both amused and horrified by this doctor's candor.
Last night, an older patient, across the hall from us, who'd been screaming in anger all day was being taken on a walk. Whatever he's going through has hit him so badly, he needs a walker and he is not in his right mind. I was wondering if they had him out walking past 10:30 pm to avoid running into people. Also, I think his nurse must be a saint. He saw me turn the corner in the hall, and all of a sudden starts aiming straight for me. Which is on some level humorous, because the wheels of the racks holding fluids sound like baby walkers. All day, people up and down the hall way, and I keep expecting a baby to come wheeling through our door. I didn't know how to respond to this man heading straight for me somewhat like a wobbly toddler. He'd been screaming accusations and obscenities all day. His face was also an odd mixture of triumphant toddler and lost old man and innocence. He walked right up to me, full of wonder, and asked if he knew me. A tear streaming down his face. I will probably never forget him. I wanted to walk with him and make him feel better, but protocol, and my lack of miraculous powers dictated I say sorry we did not know each other.
I returned to our dark room and let it all out.
But I realized something as I lay here early this morning, feeling the coils of this thin mattress poking me from below, and still grateful I'm on a mattress and not sliding off the couch.
I realized my grief is not the end, it's just the now.
Early on, we cried over the unknown. Then we cried over the losses we were facing. Loss of jobs, loss of freedoms, loss of false security in our health. Then I began to get this ominous feeling when I'd cry. I'd associate my crying with something very bad about to happen. I'd twist my crying over what is a very difficult situation into the worst possible scenario.
Because something very bad is already happening. I don't need to borrow any trouble. I can cry because this is the bad thing. I don't need to imagine anything worse, because this all by itself is difficult. There's a sort of relief in identifying this.
I know this seems so elementary. Like duh, of course you can cry over this. But it's funny how we can allow our minds to start making associations. It's funny how the unknown can produce all manner of drama. It's funny how I can't just have a good cry because someone was rude to me without worrying that my crying is an indication the worst is about to happen.
I've always been someone who cries. Ugly cries. Why wouldn't I cry in this situation? Why wouldn't I be thin-skinned and emotional?
No one ever promised life would be easy. In fact we're pretty much promised it won't be.
As I just discussed with Dom, we're re-framing. This is what's required of us. We're not trading anything. We're not bargaining. We're not singled out to be victims. This is what's required of us. And there can be tears along the way. It's okay to grieve the journey, and always understand the journey is not the destination. We will get there when we get there.
I woke with a big 'ol lump in my throat. Yesterday was hard, on so many levels.
Dominic is full of questions regarding the transplant. Sometimes the answers are useful, sometimes they are less than useful. He asked our irregular doctor about 9 out of 10 match bone marrow transplants. (Which is the best Dom is looking at currently.) The doctor said he has only ever performed 2 transplants which were 9/10 match. One lived. One died. Squeezed Dom's ankles for Edema and was out the door.
What we later found out is that the patient who died had died of congestive heart failure pretty unrelated to treatment....but we got to stew on the 50/50 chances for a while. We were both amused and horrified by this doctor's candor.
Last night, an older patient, across the hall from us, who'd been screaming in anger all day was being taken on a walk. Whatever he's going through has hit him so badly, he needs a walker and he is not in his right mind. I was wondering if they had him out walking past 10:30 pm to avoid running into people. Also, I think his nurse must be a saint. He saw me turn the corner in the hall, and all of a sudden starts aiming straight for me. Which is on some level humorous, because the wheels of the racks holding fluids sound like baby walkers. All day, people up and down the hall way, and I keep expecting a baby to come wheeling through our door. I didn't know how to respond to this man heading straight for me somewhat like a wobbly toddler. He'd been screaming accusations and obscenities all day. His face was also an odd mixture of triumphant toddler and lost old man and innocence. He walked right up to me, full of wonder, and asked if he knew me. A tear streaming down his face. I will probably never forget him. I wanted to walk with him and make him feel better, but protocol, and my lack of miraculous powers dictated I say sorry we did not know each other.
I returned to our dark room and let it all out.
But I realized something as I lay here early this morning, feeling the coils of this thin mattress poking me from below, and still grateful I'm on a mattress and not sliding off the couch.
I realized my grief is not the end, it's just the now.
Early on, we cried over the unknown. Then we cried over the losses we were facing. Loss of jobs, loss of freedoms, loss of false security in our health. Then I began to get this ominous feeling when I'd cry. I'd associate my crying with something very bad about to happen. I'd twist my crying over what is a very difficult situation into the worst possible scenario.
Because something very bad is already happening. I don't need to borrow any trouble. I can cry because this is the bad thing. I don't need to imagine anything worse, because this all by itself is difficult. There's a sort of relief in identifying this.
I know this seems so elementary. Like duh, of course you can cry over this. But it's funny how we can allow our minds to start making associations. It's funny how the unknown can produce all manner of drama. It's funny how I can't just have a good cry because someone was rude to me without worrying that my crying is an indication the worst is about to happen.
I've always been someone who cries. Ugly cries. Why wouldn't I cry in this situation? Why wouldn't I be thin-skinned and emotional?
No one ever promised life would be easy. In fact we're pretty much promised it won't be.
As I just discussed with Dom, we're re-framing. This is what's required of us. We're not trading anything. We're not bargaining. We're not singled out to be victims. This is what's required of us. And there can be tears along the way. It's okay to grieve the journey, and always understand the journey is not the destination. We will get there when we get there.
Subscribe to:
Posts (Atom)
